PA-GAP

PA-GAP (Patient Associations - Gap Analysis Platform), to improve the institutional and strategic capacities of patient associations through a scientific is an assessment tool that identifies development needs by measuring them with an approach. This one tool, not only in the financial or only in the advocacy framework of associations, in a multidimensional structure (e.g. internal governance, patient representation, funding collection, transparency, etc.). BSC (Balanced Scorecard) and AHP (Analytic Hierarchy Process) techniques, PA-GAP integrates a customized roadmap by identifying their strengths and weaknesses

What Does It Provide in Brief?

• Multidimensional analysis: Evaluates organizational and financial indicators together with patient representation and communication capacities.
• Scientific method: The data is analyzed using BSC-AHP logic, which reveals the areas in which associations need improvement in an evidence-based manner.
• Roadmap: The results obtained prepare a strategic plan to guide associations in implementation.

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Multi-disciplinary perspective

Promoting Healthy Living and the Health Policy Association's Patient and Relatives Development Academy will provide a scientific and academics, lawyers, lawyers, financial experts with contributions from consultants, communication experts and patient representatives shows. The PA-GAP tool is also thanks to this multidisciplinary structure of the academy, combining the practical needs of civil society with scientific methods of analysis has been developed with the goal of

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Basic Approach: BSC and AHP Integration

1. BSC (Balanced Scorecard - Balanced Scorecard)

It is important to note that associations long-term strategic goals and patient outcomes, rather than long-term financial results. satisfaction.

Components

o  Financial Perspective: Diversity of sources, sustainability, financial reporting.

o  Customer (Patient) Perspective: Patient satisfaction, quality of services provided by the association, communication.

o  Interior Processes Perspective: Corporate functioning, project management, decision-making mechanisms.

o  Learning and Development Perspective: Volunteer management, training programs, processes that increase institutional capacity.

2. AHP (Analytical Hierarchy Process)

Various and often where there are conflicting criteria, such as important-critical-unimportant allows systematic scoring of assessments.

• Pairwise Comparisons:
• Compares each axis and sub-criteria with each other in terms of "importance".
• Consistency ratio (CR) is calculated to measure how reliable the data is.

The combination of these two techniques use together, associations, associations objective, evidence-based and multidimensional assessment of how much it lacks in which area in a way that reveals it.

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Evaluation Axes and Definitions

PA-GAP tool, associationsassesses its multifaceted capacityon five main axes. But additional gains and techniques are also integrated into the process.

1. Corporate Governance (Corporate Governance)

• Scope: Board structure, decision book and procedures, ethical codes, conflict of interest policies.
• Why is it important?The effective functioning, credibility and financial transparency of patient associations depends on a sound corporate governance framework.
• Sample Questions: Frequency of board meetings, strategic planning, general assembly processes?

2. Engagement Capacity"

• Scope: Engagement with government agencies, media, academic institutions and patient communities.
• Why is it important?The success of advocacy activities depends on building healthy relationships with stakeholders.
• Sample Questions: How often are decision makers reached, what is the level of interaction with the media, are there projects with specialty associations?

3. Patient Representation

• Scope:The association's ability to comprehensively represent the patient groups it serves, its level of diversity and inclusiveness.
• Why is it important?The real need of patient initiatives is for the association to effectively reflect patient experiences in decision-making.
• Sample Questions: Are relatives and patients included in decision-making processes? Are feedback mechanisms adequate?

4. Sustainability Sustainability and Fundraising)

• Scope: Diversity of income sources, long-term funding strategies, volunteer support, financial transparency.
• Why is it important? The continuity of the association's activities can only be ensured by a strong financial foundation and resource management.
• Sample Questions: Are donations and grants diverse, how active are volunteers, what are the standards for financial reporting?

5. Transparency (Transparency)

• Scope: Publication of annual reports, accessibility of financial statements, openness of decision processes.
• Why is it important?
• Sample Questions: Are annual activity reports shared regularly, are donations and expenditures publicly available?

 

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Benefits and Application Results

1. Evidence-Based Development: Associations move forward based on measured and analyzed data, rather than on what they "feel" or "assume" is missing.
2. Multidimensional Overview: Organizational governance, financial structure, patient representation and interaction with external stakeholders are assessed simultaneously.
3. Customized Action Plan:Financial sustainability may be a priority for one association, while advocacy messages may be more critical for another.
4. Opportunity for Continuous Improvement: As the PA-GAP is repeated, associations have the opportunity to measure their progress and update their strategic plans.
5. Academic and Applied Balance: Since it was developed under the umbrella of the Healthy Life Promotion and Health Policy Association's Patient and Relatives Development Academy, it is compatible with both academic research standards and the needs of civil society.

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Sources