Platform Meeting
Patient Initiatives Capacity Development Platform Roundtable Meeting Held
As the Association for Promoting Healthy Life and Health Policies, we are pleased to share the information about the Patient Initiatives Capacity Development Platform Roundtable Meeting held on March 20, 2025 at University of Health Sciences Mekteb-i Tıbbiyye-i Şâhâne Külliyesi.
In this meeting, which was held with the opening speech of Director Prof. Dr. Kemalettin Aydın and the participation of Dr. Orhan Koç, a series of sessions were organized to increase the institutional and strategic capacities of patient associations, improve their advocacy and communication skills, and enable them to take a more active role in public policies.
Associations participating in the meeting:
-Inflammatory Bowel Patients Living with Stoma and All Bowel Patients Families Assistance Association
-Cardiovascular Diseases and Awareness Association
-Dancing with Cancer Association
-Pulmonary Hypertension and Scleroderma Patient Association
-Sedecia Patients Solidarity Association
justify;">-Neuroimmune Diseases Patient and Solidarity Platform
In each session, expert speakers shared knowledge and experience with association representatives. Participants had the opportunity to discuss best practices and solutions on issues such as corporate governance, financial sustainability, legal-administrative processes, advocacy and communication strategies.
In the period following the meeting, a 3-month mentoring process will be offered to our participating associations. During this process, comprehensive analyses will be conducted to identify the strengths and weaknesses of each association, followed by the preparation of tailor-made action plans. Through regular mentoring sessions, the organizational development of our associations will be closely monitored and their strategic skills will be strengthened.
With this work, we aim to contribute to the strengthening of patient-oriented policies and a more effective role of patient associations in the public eye. Our program is sponsored by Amgen, Boehringer Ingelheim and Takeda. We believe that this platform will create a long-term improvement in patient rights and advocacy activities.